Well, I had a couple of frustrating weeks where it seemed no matter what I did my body refused to lose weight. I am happy to report that I am down 7 lbs since I started eating healthy again. That means my total weight loss is 30 lbs !!!! I have 53 more lbs to go to meet my wedding day goal. Which is 5 months and 27 days from now, or 25.86 week. If I can lose 2 lbs per week I just might reach my goal. So, I've been on a diet since I was 13 - Thank You PCOS (sarcasm) - and I have a few tried and true tips that actually work. They are realistic things we can all do to improve our eating habits and lose weight if needed.
1. KEEP FOOD READY. I don't expect anyone, unless you are a professional body builder or athlete, to go as far as cooking all your meals in advance or anything. However, the worst thing you can do when you are on a diet is to not have food that you CAN eat ready for when you get hungry. Trust me, if you get caught hungry and there is no food in your house you can eat, you are going to be the first one in line driving through some fast food joint because you are starving and your brain is telling you EAT OR DIE ! So make sure your kitchen is stocked with healthy meals and snacks that you can turn to instead.
2. COOK IN BULK. When you are really really hungry the last thing you want is to stop and have to spend an hour fixing a meal. I like to keep meals/snacks ready for when I need them. I don't pre-plan every meal or anything, but I like to be prepared. Some of my favorite things to fix in bulk are: tuna fish (like a freaking gallon), barracho beans, cut up celery sticks to eat with peanut butter, baby carrots and home made ranch dip made from low fat sour cream, chicken soup ( I cook a whole chicken, de-bone it and make a high protein, low carb and very filling home made soup) and turkey chili in the crock pot. For sugar cravings I keep sugar free chocolate vanilla swirl jello pudding (60 calories) which I love to mix with a spoon full of peanut butter and I also keep sugar free jello ready at all times in the fridge. And of course, don't forget, fresh fruit and veggies are staple snacks.
3. GIVE YOURSELF A CHEAT DAY ONCE A WEEK. A healthy diet should be for the long haul. It's about replacing bad eating habits with healthier choices. However, there is a reason bad food tastes so good. Our bodies crave the naturally high caloric and fat amounts. It is my humble opinion that if we try and ignore these cravings all together, then we are setting ourselves up for disaster. Like eating a gallon of ice cream at 3 in the morning disaster. That is why I think a controlled cheat day is essential. Give yourself one day a week where you can eat what you want, just be careful not to eat too much. For instance going back to the ice cream example: have a bowl of ice cream - don't eat the whole carton. Foods should never be labels "bad" or "evil", everything is ok in controlled moderation.
Good luck to my fellow travelers. We can do this ! Living a healthy life is a choice we make every day. Here is to good choices.
Monday, June 3, 2013
Thursday, May 23, 2013
What It Is Like To Be A Fat American
I hate being fat. I am thankful for a lot of things. That I am alive. That I have friends, family and dogs that love me. That I have my wonderful Sean in my life. That I can sing and write and garden. But, I HATE being fat. I don't hate being fat because some magazine says I should be a size two. I honestly don't find women that thin attractive. Sorry if you are one of them, but women that skinny tend to look like adolescent boys. I would say the most attractive size is somewhere between an 8 and a 12 - depending on how tall the woman is. And yes, I still feel like I look like the Michelin Man crossed with the Pillsbury dough boy.
What I hate about being fat is the way my body feels. I hate when my pants dig into my gut when I am sitting at a restaurant. And no, I am not wearing too small sizes. That's another thing I hate. I hate trying to find an article of clothing that actually fits. Either they can be too tight at times or they start falling off after I wear them for over an hour. So I live in yoga pants. I hate not being able to wear dresses because my big fat thighs rub together and it hurts. I hate the heat. Being fat and Texas heat do not mix. I hate not being able to wear shorts. I miss shorts. Shorts are so cute and comfortable. I hate getting tired so easy. I miss my energy. I hate it when my feet hurt from just standing or walking around. I also hate the way society looks at and treats people my size. It is automatically assumed I eat like crap and lay on the couch all day. So not true. I don't think anyone ever thinks - maybe they have an endocrine disorder. Not that I always ate perfect, but there were times I was literally dieting and still gaining weight because my insulin and hormones were so out of whack. There are also a lot of overweight people who got there because they were/are depressed and eating made them feel better.
It is a crazy world we live in. A complete paradox. On one end you have this ultra presuristic society that says "thin is in" - "you can never be too thin or too rich". Millions of women across this country gauge their self worth by a number on a scale. I am guilty of falling into that trap. On the other end, you have constant junk food shoved into your face. Commercials, check out lanes at grocery stores, restaurants with their gigantic portions and of course fast food for us over-worked under-paid over-booked and out of time Americans. Then once you get fat, it's constant bombardment of diets, gyms, products shoved in your face to lose weight. This thing. This "overweight American" is like a giant living breathing organism that feeds off of its own destruction. So yeah, I could smile and say cliché things like "beauty is on the inside" and it is but I am also going to be honest and say being fat sucks. I hate being fat. So what is it like to be a fat American? Shitty.
What I hate about being fat is the way my body feels. I hate when my pants dig into my gut when I am sitting at a restaurant. And no, I am not wearing too small sizes. That's another thing I hate. I hate trying to find an article of clothing that actually fits. Either they can be too tight at times or they start falling off after I wear them for over an hour. So I live in yoga pants. I hate not being able to wear dresses because my big fat thighs rub together and it hurts. I hate the heat. Being fat and Texas heat do not mix. I hate not being able to wear shorts. I miss shorts. Shorts are so cute and comfortable. I hate getting tired so easy. I miss my energy. I hate it when my feet hurt from just standing or walking around. I also hate the way society looks at and treats people my size. It is automatically assumed I eat like crap and lay on the couch all day. So not true. I don't think anyone ever thinks - maybe they have an endocrine disorder. Not that I always ate perfect, but there were times I was literally dieting and still gaining weight because my insulin and hormones were so out of whack. There are also a lot of overweight people who got there because they were/are depressed and eating made them feel better.
It is a crazy world we live in. A complete paradox. On one end you have this ultra presuristic society that says "thin is in" - "you can never be too thin or too rich". Millions of women across this country gauge their self worth by a number on a scale. I am guilty of falling into that trap. On the other end, you have constant junk food shoved into your face. Commercials, check out lanes at grocery stores, restaurants with their gigantic portions and of course fast food for us over-worked under-paid over-booked and out of time Americans. Then once you get fat, it's constant bombardment of diets, gyms, products shoved in your face to lose weight. This thing. This "overweight American" is like a giant living breathing organism that feeds off of its own destruction. So yeah, I could smile and say cliché things like "beauty is on the inside" and it is but I am also going to be honest and say being fat sucks. I hate being fat. So what is it like to be a fat American? Shitty.
Saturday, May 18, 2013
Loosing Weight is Hard - But Worth It
I thought about writing only when things went well, but I realized that wouldn't be REAL. In every journey there are obstacles. My doctor likes to describe PCOS as a freight train. I call it the "freight train - weight gain". She says that you have to stop the freight train before you can put it in reverse. It just so happens that the freight train of PCOS is very large and very powerful. Don't Give Up. Sometimes you will lose weight and sometimes you won't.
The most important thing is that we learn to live healthier. Moving mountains is hard. Stopping freight trains is even harder. I like the idea that you can move a mountain one pebble at a time. Your progress may be slow, but it is still progress.
I gained 2 lbs this week. I really don't know what to say. I stuck to my diet 95%. I couldn't tell you how or why I gained weight, but I am not going to let one bad week's results stop me. I have still lost 25 lbs. Who knows how much I will lose next week. And, that's just it. I won't find out unless I let there be a next week. Don't give up. I'm not.
Hang in there. - Casey
Tuesday, May 14, 2013
Living With a Stigma : Mental Illness
May is National Mental Health Awareness Month. I don't think it is a month that is celebrated very much. I mean, what is there to celebrate? Mental Illness sucks! But, what sucks almost worse than having a mental illness such as depression, anxiety, bi-polar, borderline, schizoid etc. - is the way people treat you. Especially the people closest to you. I know that living with a person who has mental illness is hard. I mean, I actually know. My husband is bi-polar II. I have had to read suicide notes written to me. I have had to check him into treatment. I have had to learn to recognize when he is up or down, and when to let stuff go. I often do check ins. Are you up? Are you down? Are you safe? I don't love my husband any less. I don't think any less of him. And, I don't treat him like he is less of a person. It's not his fault that he has bi-polar disorder any more than it is his fault that he has Thrombophilia (a rare genetic blood disease) or severe Arthritis. It is literally NOT HIS FAULT AT ALL.
I am of a rare breed that isn't ashamed that I also have mental illness. I am open about it. I talk about my depression. I talk about being bed ridden for months. Not because I want anyone's sympathy, but because I want to let people know where I have been. Why I didn't show up to their invite. Why I haven't called. Why I missed Thanksgiving. I want them to know - it's not them, it's me. Some people completely understand. I recently hung out with two wonderful friends I hadn't seen in a year, and had a fantastic time. It was like no time had gone by at all. They understood. But not everyone understands. I think it is hard on older generations. I think it is hard on certain members of my family, because they grew up with mental illness in our family and it scared them. I think it still scares them. I also think they are scared they will see pieces of themselves in me. Sometimes I feel like a leper. I've noticed people are very careful when they talk to me, like they might snip the wire that makes the bomb explode. YOU MAY FEEL LIKE YOU ARE WALKING ON EGG SHELLS AROUND ME, PLEASE KNOW I AM WALKING ON EGGSHELLS TOO. Please stop. In my dreams, we all stop walking on egg shells and just start treating each other like human beings. I am far from perfect, but having a mental illness does not make me less of a person. I shouldn't be treated any better, worse or different than any other human being.
We have come so far as a society towards acceptance and education of people who are different. From civil rights to gay rights to compassion and education for people with disabilities such as mental retardation, autism, physically handicapped, etc. I hope in my life time we as a society become more accepting of people with mental illness. Only a tiny fraction of a percentage of mentally ill people are harmful, most are just average people who suffer from depression and/or anxiety. You can't catch mental illness. Although you might be lucky if you did. Some of the funniest, most famous and most talented people suffered. Robin Williams is bi-polar and is hands down one of the greatest comics of all time. Princess Dianna had borderline personality disorder and she was one of the kindest most giving and loved people of the 20th century. I like to think of Sean and me like Robin and Dianna - although that is a pretty funny couple if you think about it. Here are a few more people from NAMI's website... http://www.nami.org/
"People with Mental Illness Enrich Our Lives"
Information about famous people throughout history who have
had a serious mental illness.
Abraham Lincoln
The revered sixteenth President of the United States suffered from severe and incapacitating depressions that occasionally led to thoughts of suicide, as documented in numerous biographies by Carl Sandburg.
Virginia Woolf
The British novelist who wrote To the Lighthouse and Orlando experienced the mood swings of bipolar disorder characterized by feverish periods of writing and weeks immersed in gloom. Her story is discussed in The Dynamics of Creation by Anthony Storr.
Lionel Aldridge
A defensive end for Vince Lombardi's legendary Green Bay Packers of the 1960's, Aldridge played in two Super Bowls. In the 1970's, he suffered from schizophrenia and was homeless for two and a half years. Until his death in 1998, he gave inspirational talks on his battle against paranoid schizophrenia. His story is the story of numerous newspaper articles.
Eugene O'Neill
The famous playwright, author of Long Day's Journey Into Night and Ah, Wilderness!, suffered from clinical depression, as documented in Eugene O'Neill by Olivia E. Coolidge.
Ludwig van Beethoven
The brilliant composer experienced bipolar disorder, as documented in The Key to Genius: Manic Depression and the Creative Life by D. Jablow Hershman and Julian Lieb.
Gaetano Donizetti
The famous opera singer suffered from bipolar disorder, as documented in Donizetti and the World Opera in Italy, Paris and Vienna in the First Half of the Nineteenth Century by Herbert Weinstock.
Robert Schumann
The "inspired poet of human suffering" experienced bipolar disorder, as discussed in The Dynamics of Creation by Anthony Storr.
Leo Tolstoy
Author of War and Peace, Tolstoy revealed the extent of his own mental illness in the memoir Confession. His experiences is also discussed in The Dynamics of Creation by Anthony Storr and The Inner World of Mental Illness: A Series of First Person Accounts of What It Was Like by Bert Kaplan.
Vaslov Nijinsky
The dancer's battle with schizophrenia is documented in his autobiography, The Diary of Vaslov Nijinksy.
John Keats
The renowned poet's mental illness is documented in The Dynamics of Creation by Anthony Storr and The Broken Brain: The biological Revolution in Psychiatry by Nancy Andreasen, M.D.
Tennessee Williams
The playwright gave a personal account of his struggle with clinical depression in his own Memoirs. His experience is also documented in Five O'Clock Angel: Letters of Tennessee Williams to Maria St. Just, 1948-1982; The Kindness of Strangers: The Life of Tennessee Williams by Donald Spoto, and Tennessee: Cry of the Heart by Dotson.
Vincent Van Gogh
The celebrated artist's bipolar disorder is discussed in The Key to Genius: Manic Depression and the Creative Life by D. Jablow Hershman and Julian Lieb and Dear Theo, The Autobiography of Van Gogh.
Isaac Newton
The scientist's mental illness is discussed in The Dynamics of Creation by Anthony Storr and The Key to Genius: Manic Depression and the Creative Life by D. Jablow Hershman and Julian Lieb.
Ernest Hemingway
The Pulitzer Prize-winning novelist's suicidal depression is examined in the True Gen: An Intimate Portrait of Ernest Hemingway by Those Who Knew Him by Denis Brian.
Sylvia Plath
The poet and novelist ended her lifelong struggle with clinical depresion by taking own life, as reported in A Closer Look at Ariel: A Memory of Sylvia Plath by nancy Hunter-Steiner.
Michelangelo
The mental illness of one of the world's greatest artistic geniuses is discussed in The Dynamics of Creation by Anthony Storr.
Winston Churchill
"Had he been a stable and equable man, he could never have inspired the nation. In 1940, when all the odds were against Britain, a leader of sober judgment might well have concluded that we were finished," wrote Anthony Storr about Churchill's bipolar disorder in Churchill's Black Dog, Kafka's Mice, and Other Phenomena of the Human Mind.
Vivien Leigh
The Gone with the Wind star suffered from mental illness, as documented in Vivien Leigh: A Biography by Ann Edwards.
Jimmy Piersall
The baseball player for the Boston Red Sox who suffered from bipolar disorder detailed his experience in The Truth Hurts.
Patty Duke
The Academy Award-winning actress told of her bipolar disorder in her autobiography and made-for-TV move Call Me Anna and A Brilliant Madness: Living with Manic-Depressive Illness, co-authored by Gloria Hochman.
Charles Dickens
One of the greatest authors in the English language suffered from clinical depression, as documented in The Key to Genius: Manic Depression and the Creative Life by D. Jablow Hershman and Julian Lieb, and Charles Dickens: His Tragedy and Triumph by Edgar Johnson.
What an impressive list! So, in conclusion, I am going to go on embracing who I am - mental illness and all. I am so much more than a condition, I am a human being just like you. Know that I work tirelessly at how I act and behave. If you can't accept me for who I am, then that is your problem, not mine. Thank you to everyone who supports me and loves me. Happy Mental Illness Awareness Month! Maybe, just maybe, it is worth celebrating.
Diet: What I Am Eating
We all know how important diet and exercise are to living a healthy and happy life. This could not be more true for women with PCOS, Interstitial Cystitis and Depression. Because of our bodies messed up endocrine system, it is highly recommended by all the health journals I have read and doctors I have talked to - to consume a low glycemic diet. Here is a bit about low GI diets from WebMD:
The glycemic index has been a popular weight loss tool to help dieters lose weight. Also referred to as the glycemic index diet, GI diet, and low glycemic diet, it is the basis for many popular diet plans, such as South Beach, Nutrisystem, The Zone, Sugar Busters, Glucose Revolution, and Ending the Food Fight.
The glycemic index measures carbohydrates. The index is a list of how blood sugar levels rise after you eat a small portion of a carbohydrate food.
For the whole article, here is the link: http://www.webmd.com/diet/features/glycemic-index-diet
This way of eating, works well for both Sean and I, since he has diabetes and I have PCOS. We both have insulin resistance, just from two different diseases. The best thing though, is that with proper diet and exercise Sean can cure his diabetes and I can control my PCOS.
A typical day's meal plan would go as follows...
Breakfast
3 eggs
2 strips of bacon
coffee
Lunch
Salmon salad
(fresh cooked salmon over a bed of Romaine mix lettuce with flax or sunflower seeds, dried cranberries, chopped tomatoes, chopped cucumber and a small sprinkle of feta cheese and a vinaigrette dressing)
Dinner
Grilled Chicken
Bean Medley (black beans, pinto beans and white beans cooked together)
Broccoli, Peas or other green vegetable
Snacks
NUTS!!! Almonds are the best
I like to go to the local health food store and stock up on trail mix as well
sugar free jello
a piece of whole fruit i.e. an Apple
Celery sticks with peanut butter
Whole Fruit Smoothie - frozen strawberries, pineapples, mango, peaches mixed with Rice or Almond Milk with Splenda to add sweetness
sugar free chocolate - vanilla swirl pudding with a spoon of peanut butter in a bowl
I do not count calories, I simply eat when I am hungry. However, if you find after a few weeks that you are not losing 1-2 lbs a week, it is smart to keep a food journal. You very well may find that you are eating more than you think.
I also take one cheat day a week. I do this for many reasons. One is that staying on a diet is HARD, having a day off to quench that craving helps one from feeling like they cheated and then going on a binge. Also, it helps boost your metabolism. If you aren't eating enough, your body goes into starvation mode and it doesn't matter how healthy you eat - you won't lose weight. So give yourself a break and take one day a week to eat what you want - within reason.
Supplements are also important. I take three different kinds. All are made by New Chapter. They are 100% organic and top of the line. They are very expensive in the health food stores, but if you go to Amazon.com you can get them for 25% of the price. *** I am in no way affiliated with New Chapter, I simply recommend their brand from my own personal use *** I take:
Every Woman Daily Vitamin once in the morning once at night. Beyond the normal A-Z vitamins it also offers Herbal Blends that offer immune, stress and hormonal support.
I take New Chapter Whole Mega Fish Oil once at night before bed - Fish Oil is super important for women with PCOS because 1. we have a high risk for heart disease and 2. we have inflammation and fish oil helps reduce that
And, I take New Chapter Diet & Energy once in the mornings. My depression causes me to be very lethargic. I have gone as far as being prescribed Ritalin and Adderall. Those drugs are poison. You might as well go smoke crack. I am trying to regain my energy through diet, exercise and natural supplements.
I also take prescription Metformin, a diabetes drug that helps control insulin levels. And, I take prescription Spironolactone, a drug that reduces testosterone levels. It is the over abundance of testosterone in women with PCOS that causes acne, excess hair growth in places we don't want and excess hair loss such as Alopecia and Male Pattern Baldness.
I am not a dietitian or a nutritionist, but I have gone to many. I also have read countless amounts of material on PCOS. The biggest thing is finding the right combination of foods, supplements, medication and exercise for you. We are all unique beings on our own individual journey. Good luck on yours !
Monday, May 13, 2013
Weddings and Weight Loss
There is nothing like a good old fashioned wedding to motivate you to get your butt in gear and lose some weight. Also, Sean, my wonderful common law husband - soon to change my last name soul mate, is having problems with an enlarged liver and spleen. They have ruled out hepatitis and medications and think it is from obesity. This really is life or death for us to get healthy. If Sean and I are going to take control of our health, we are going to have to do it together. We need each other's support. And, it really helps to have everyone in the household on the same healthy eating plan to prevent slip ups. If you are trying to get healthy too, I highly recommend a health buddy. It can be anyone. If you don't have someone, join an online forum like weight watchers or try joining http://www.pcosdietsupport.com/.
Sean and I have made some significant progress over the past 6 months, but now it is time to kick it into high gear. We both lost about 30 lbs in October 2012, when we both came down with mono. But then in late December we both gained back a few of those lost pounds. Two weeks ago we started eating a low glycemic diabetes and PCOS friendly diet. I also got off of the birth control pill, to prepare for us trying to start a family after the wedding. Don't worry mom, I promise not to get knocked up before the wedding. It's 2013, but I respect your wishes - 'cause I love you. But the baby thing is another topic we shall bring back up in about 6 months. The wedding is December 1st, 2013. That means Sean and I have 29 weeks to lose weight. We are hoping to lose 1-2 lbs per week - so 30-60 lbs additional by our wedding date.
So far Sean has gone from 302 lbs to 272 - for an impressive 30 lb weight loss. He lost 6 lbs in the past 2 weeks. MEN. ugh. But I am happy and proud of him. I am down from my high of 283 lbs to 256 lbs. That is an impressive 27 lbs. I lost 4 lbs in the past 2 weeks. We both have lost about 10% of our body weight so far. One of my motivations is this beautiful dress I ordered for the wedding, which I have hanging in my closet.
Here is what it looks like on a human being.....
I think it is much prettier in person. 100% pure silk, blush color with lots of lace details. Love it!
Now when attempting to lose weight, it is very easy to get discouraged. We went to visit my mother, who is sick with stage four breast cancer, and at the end of the day we took a photo. Everyone looks fantastic and happy and I look like a cross between the Michelin Man and the Pillsbury Dough Boy.
I wanted to badly to un-tag myself, but I know this photo means a lot to my mom, so I sacrificed my pride and let it stay out there for all of Facebook to see. And now all of blog land can see it too. Even after losing 27 lbs, I still don't recognize myself. I've got a long way to go.
You know, I think it is ok to embrace whatever we are feeling. I know some people would say, "oh you have to stay positive" But, if I don't address the fact that I truly feel like I look like a cross between the above two pictures, then I am going to bottle it up inside, get frustrated and give up. I think it is much better to be open about how I feel and get a good laugh at myself.
Weight loss is hard. Especially for people with PCOS and Diabetes. Add chronic pain and depression and its an extra steep up-hill climb. So if you are reading this and you know me and you wonder "What can I do to help" I would say, just a nice "Good Job" when I post our weight loss. Or a "Don't Give Up" if I have a bad week. If you are reading this and you are on your own weight loss journey and/or also have PCOS, chronic pain and depression, I would say "It is ok to feel whatever you are feeling. Don't be afraid to be honest with yourself and others. Pretending you are happy when you are not may pass the time, but it doesn't change your situation. Only you can change your situation and make a happier - healthier life for yourself". That is what I am working on. Changing my life for the better.
Sean and I have made some significant progress over the past 6 months, but now it is time to kick it into high gear. We both lost about 30 lbs in October 2012, when we both came down with mono. But then in late December we both gained back a few of those lost pounds. Two weeks ago we started eating a low glycemic diabetes and PCOS friendly diet. I also got off of the birth control pill, to prepare for us trying to start a family after the wedding. Don't worry mom, I promise not to get knocked up before the wedding. It's 2013, but I respect your wishes - 'cause I love you. But the baby thing is another topic we shall bring back up in about 6 months. The wedding is December 1st, 2013. That means Sean and I have 29 weeks to lose weight. We are hoping to lose 1-2 lbs per week - so 30-60 lbs additional by our wedding date.
So far Sean has gone from 302 lbs to 272 - for an impressive 30 lb weight loss. He lost 6 lbs in the past 2 weeks. MEN. ugh. But I am happy and proud of him. I am down from my high of 283 lbs to 256 lbs. That is an impressive 27 lbs. I lost 4 lbs in the past 2 weeks. We both have lost about 10% of our body weight so far. One of my motivations is this beautiful dress I ordered for the wedding, which I have hanging in my closet.
Here is what it looks like on a human being.....
I think it is much prettier in person. 100% pure silk, blush color with lots of lace details. Love it!
Now when attempting to lose weight, it is very easy to get discouraged. We went to visit my mother, who is sick with stage four breast cancer, and at the end of the day we took a photo. Everyone looks fantastic and happy and I look like a cross between the Michelin Man and the Pillsbury Dough Boy.
I wanted to badly to un-tag myself, but I know this photo means a lot to my mom, so I sacrificed my pride and let it stay out there for all of Facebook to see. And now all of blog land can see it too. Even after losing 27 lbs, I still don't recognize myself. I've got a long way to go.
You know, I think it is ok to embrace whatever we are feeling. I know some people would say, "oh you have to stay positive" But, if I don't address the fact that I truly feel like I look like a cross between the above two pictures, then I am going to bottle it up inside, get frustrated and give up. I think it is much better to be open about how I feel and get a good laugh at myself.
Weight loss is hard. Especially for people with PCOS and Diabetes. Add chronic pain and depression and its an extra steep up-hill climb. So if you are reading this and you know me and you wonder "What can I do to help" I would say, just a nice "Good Job" when I post our weight loss. Or a "Don't Give Up" if I have a bad week. If you are reading this and you are on your own weight loss journey and/or also have PCOS, chronic pain and depression, I would say "It is ok to feel whatever you are feeling. Don't be afraid to be honest with yourself and others. Pretending you are happy when you are not may pass the time, but it doesn't change your situation. Only you can change your situation and make a happier - healthier life for yourself". That is what I am working on. Changing my life for the better.
Sunday, March 17, 2013
Recap: My Journey With PCOS
Hi my name is Casey, I am 29 years old. My weight has been an issue since I was 14. I would say that my ”normal” healthy weight is about 140, but I have been as low as 125 and as high as 283. I am 5’5” but very muscular. To maintain that weight I was constantly on a diet, exercised daily, was a cheerleader and a powerlifter. Every other year or so I would put on about 30-50 lbs without eating badly and then I would bust my butt and loose it. I must have had my thyroid checked half a dozen times by different doctors since the age of 16, only to be told I was perfectly healthy. When I turned 20 my aunt noticed that my hair was thinning. I went to a dermatologist who said it was because I had lost so much weight. But I just had this feeling that something was wrong with my body. I can’t explain it, I just knew. After I gained the weight back I went and saw an endocrinologist who did a lot of blood work and said basically that nothing was wrong with me, that I was 40 lbs overweight and to go on a diet. So I tried South Beach and lost 50 lbs. Over the next few years my hair continued to fall out, my periods became lighter and lighter, I had hair growth on my face and chest, I was constantly depressed, I was lethargic, and my weight got harder and harder to control. Finally at the age of 25 my GP sent me to a reproductive endocrinologist after a test showed that my estrogen level was a 9. Yes literally worse than a 90 year old woman. I will never forget that conversation, when she said to me that something was wrong with my reproductive system, that I probably hadn’t ovulated in years -if at all, and that I would not be able to have a child without medical help. I remember how matter of fact she spoke as if she were telling me I had a cold. I didn’t react, I was kind of in shock, until I got to the elevator of the building and I just broke down in tears. At the RE I was given an ultra sound which showed the ”pearls” and I was also given a blood glucose test which showed I was mildly insulin resistant but not yet diabetic. I was put on Yaz and told to come back when I was ready to have a baby. I think RE’s are too concerned with making money on fertility treatments, then to take the time to help a person with an endocrine disorder. After about a year and no improvement in my symptoms I went back to my GP and told her I wanted help and I was not satisfied with the medical care I had been given so far. She put me on metformin and spironolactone. And I use Rogaine to this day. I wish I could say that finding this diagnosis made me change my life, but instead I managed to put on 80 lbs in one year. Last year after being put on a drug Resperidon for psychological reasons I gained 50 lbs in 3 months. And I have the stretch marks to prove it! My weight hit an all time high of 283 lbs September of 2012. I hit an all time low with my depression and was virtually bed ridden sleeping up to 18 hours a day. I lost my job of 5 years for running out of FMLA. I ended up in a treatment center for two months for outpatient care to try and get a grip on my depression, but it didn't work. I did however make a positive step towards my health and gave up drinking. Shortly after I stopped drinking I was diagnosed with a chronic pain disease called Interstitial Cystitis. It is a chronic pain disease of the bladder. My focus turned to dealing with IC and I really let my weight soar as I struggled to find foods that I could actually eat. With IC you can’t eat anything acidic as it erodes the already diseased lining of the bladder and causes bleeding ulcers and lesions. I ended up bed ridden for about 5 months. Ironically I lost 30 lbs during my bed ridden depression, but I don’t recommend that diet as it is misery. After I lost the 30 lbs I have had 2 straight months of an actual period, which is just another reminder how important weight loss is for PCOS. I have since had appointments with my GP and my Psychiatrist who switched my anti depressants around and added Adderall. I don’t recommend Adderall, but in some cases of medication resistant major depression it can be one of the only things to wake you up. So here I am today. I have made a conscious decision that I have to put myself first and stop trying to fix everyone’s problems around me. It’s like on an air plane where in an emergency you have to put on your air mask first or you’ll be passed out and no help to others. I scoured the internet for hours and was extremely happy to find this web site. http://www.pcosdietsupport.com/ I’ve done countless hours of research over the years about PCOS, even ordering huge medical guidebooks. However, I was surprised how Tarryn so easily explained everything and I love her accent. My husband and I plan on starting the PCOS diet plan next week. I am hoping to build on my 30 lb weight loss momentum and the ultimate goal is to lose another 100 lbs, which would put me at 150 and right within the healthy weight range for my height. I also hope to start trying for a baby in about 2 years once I have reached my health goals. If I could say one thing about my almost 10 year search for what was wrong with me, it is that I wish those doctors and endocrinologists I went to would have spent a little more time and dug a little deeper and found out that I had PCOS so I could have changed my lifestyle then and never ended up at 283 lbs and lost all the hair I did. We as women have to listen to our bodies. I knew something was wrong with me since I was a teen ager. We have to be our own advocates. Trust me, there isn’t a doctor out there who can cure you, because there is no cure. So it is all up to us, each and every one of us, to fight this battle daily and someday win our personal wars with PCOS.
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